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Trae's Story

Posted on May 21, 2016 at 10:35 PM

Our son, Trae was recently diagnosed with moderate to severe dyslexia. Statistics show that 1 in 5 children have dyslexia and it ranges from mild to severe. Dyslexia is the most common cause of reading difficulty in elementary students. Dyslexia is not a medical condition; there is no medication that can heal it. However, dyslexia does respond to timely and appropriate intervention.

Trae had been struggling academically since preschool. As his parents we knew something was wrong, but we just didn’t know what. We were told several times he was just underexposed. Trae began attending Lincoln in the fall of 2012 and soon after his teacher put him in RTI for reading, and later on in the year she added Math. He started with Tier 1 and was also getting individualized tutoring the last month or two of the school year. Trae was also getting tutored one day a week after school for reading and math. Trae attended summer school this past summer in hopes of catching up in reading and math. After working tirelessly at school, at tutoring, and at home we were seeing little to no improvement.

When Trae didn’t show any improvement his summer school teacher suspected that he may have dyslexia. So we began our journey to diagnose his learning disability. Miss Garretson began teaching Trae under the Barton System while he waited for all his testing results to come back. Under the Barton System we began to see improvement and for the first time in a long time felt hope. We feel very blessed to have found Miss Garretson. This system works when nothing else has. It is so important to give these talented, creative, and smart kids a fighting chance to succeed in school.

Trae is currently under a 504 plan and receiving accommodations in the classroom. His classroom accommodations have been very helpful; however he is still struggling emotionally. Trae continues to struggle each day with fear and anxiety and he just started seeing a counselor to help manage this. It’s very common for dyslexic children to become fearful because of their constant frustration and confusion in school. Trae has stomach aches and headaches daily. It’s a struggle getting him to school each day. Dyslexia affects Trae the most but it also greatly affects our family life both financially and emotionally. “Like any handicapping condition, dyslexia has a tremendous impact on the child’s family. However, because dyslexia is an invisible handicap, these effects are often overlooked” according to Dr. Michael Ryan. Our journey with dyslexia has just started and it’s been a rough road thus far. We never imagined getting a diagnosis was the easiest part. Our hopes are that the school will recognize dyslexia and do everything in their power to help these kids.

Dyslexia is not going to go away. Our hopes are that with more awareness this will become a known learning difference! Even though, Illinois doesn’t currently have any laws in regards to dyslexia let’s be proactive in our response to it.


 

 

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